Privacy Statement of the International Vasa Previa Foundation, Inc.
We use personally-identifying information from users in various ways to further our charitable and educational objections. In order to use our forums and chatrooms, users are required to register a profile. A profile contains the following: a username, password, email address and (optionally) ICQ, AOL, MSN or YAHOO messenger user names. Your password is protected by an encryption program, but no encryption program is used to protect the transmission of other information you submit to us. In addition, if you request membership in the International Vasa Previa Foundation through IVPF@YahooGroups.com or Vasa_Previa@YahooGroups.com, you may also be contacted by email in order to request further identifying information regarding your experience with vasa previa. We may enter any information you send (either as a profile or an email response) into a database to make available to researchers and administrators of our organization for the purpose of furthering our objective of preventive diagnosis of vasa previa. All the information you provide us through our profile forms and in response to any further email requests is stored securely offline. We do not disclose or sell any personal-identifying information to anyone outside our Foundation without your express permission. Furthermore, you are not obligated to provide any information, beyond the requirements of a profile, in order to utilize the forums, chat rooms or other information available on our website.
Please remember that any and all information you choose to disclose in our forums and chat rooms becomes publicly known to all other users in the forums and chat rooms as well as our moderators and administrators. Consequently, you should exercise caution when deciding to share any personal information in the forums or chat rooms. Any user who finds material posted by another user objectionable is strongly encouraged to contact us via the email address below. We reserve the right to remove or modify any data submitted to our forums and chat rooms when we believe the post constitutes a violation of our policies and goals, whether stated or implied.
Our forums and chat rooms give users two options for changing or modifying information you provide in your profile:
1. Users can login with their username and password to change information in their profile, and
2. In case of a lost password, users can send an email to the administrator at the email address below.
If you need to change information you may have provided by email for our database, please contact the Foundation at the email address provided below.If you have any questions about this privacy statement, the use of information you provided, or any other comment, please contact: email@example.com. If you send us an email, you should know that email is not necessarily secure against interception. So, if your communication includes any sensitive or personal information, for which you wish to provide extra protection, please contact us by postal mail or telephone rather than email. IVPF, 2109 5th Street, Moline, IL 61265, 267-790-6693